Showing posts with label community. Show all posts
Showing posts with label community. Show all posts

Saturday, April 24, 2010

Out-of-the-Box Thinking About Infertility

What if instead of keeping your infertility a secret you actually told everyone? I mean EVERYONE. Before you say, “Never!” read this excerpt of a story from the San Francisco Chronicle:
Molly and Brian Walsh were in their mid-30’s when they married. They wanted to start a family, but Brian has Marfan’s syndrome, a connective tissue disease, and they did not want to pass it on to their child. They needed $25-30,000 for IVF with PGD (pre-implantation genetic diagnosis). They saved $10,000. Then, they did what is to many infertile couples unthinkable: they went public. In a big way.

The decision to go public was not easy, but ultimately, this was a race against the clock. They used email, Facebook and Twitter to invite friends to a “Makin’ Whoopie” wine tasting party, at $35 a head. Not only did 100 friends agree to attend, they also donated trips, tours, art and wine for a silent auction. Many also offered up stories of their own struggles with fertility to encourage the Walshes in their pursuit of a healthy, successful pregnancy.

Funds raised: $8000. Hope renewed: priceless.

What do you think? Outrageous? Inspired? Unimaginable? Whatever you may think about the idea, I think there’s a lot to learn from the story. Here are some examples you could follow:

1. Face the truth – For Molly & Brian, inheritable genetic defects indicated IVF with PGD. And that required a big budget. Money was tight and time was short. The facts weren’t encouraging, but facing them squarely gave them a starting point.
2. Set pride aside – The one variable they could control was their insistence on privacy. Once they realized they needed assistance to reach their goal, the choice was clear: forget pride, get help. All that required was humility.
3. Come out of hiding – The party invitation read: “You can’t help us in the bedroom, but you can help us make a baby.” Pretense was pointless, as was secrecy. They sent invitations to hundreds of people – some of whom they hadn’t seen or talked to in years.
4. Ask for help – Their request for help explained their situation and invited people who cared to be part of the solution. The humility inherent in their appeal was irresistible to many of those they contacted.
5. Invite openness – After publicly telling their story, the Walshes experienced an unexpected blessing: “Our friends shared amazing stories with us on Facebook – successes, as well as struggles and challenges.” The Walsh’s willingness to share their story opened the door for other couples to do the same.
6. Build community - Before this, Brian Walsh said, “we had felt like a private island in no-man’s land – surrounded by friends who have kids.” Knowing about other couples’ struggles “made it easier.” The Walshes formed new bonds with old friends whose success conceiving had seemed to create a wall of separation; now, they shared a common foe (infertility) and a common goal (parenthood).
7. Encourage investment – The Walsh’s friends literally invested in the outcome of their infertility journey. But even figurative investments translate into ongoing support & concern, instead of perceived judgment or unwelcome pity.
8. Leave a legacy – The Walsh’s creative campaign not only raised funds, it also created a huge network of loving future godparents – each of whom is deeply invested in breathing life into the dream of a Walsh family. What a legacy… for this newly-strengthened community of friends, and for the Walsh’s much-anticipated child.

I believe the example the Walshes set is relevant to every infertility journey. Not the party, necessarily… but the logic behind it. The Bible teaches that we are one body [I Cor 12:22-27]. We need each other. We are intended to bear each other's burdens, and share each other's joys. How can that happen if infertile couples refuse to share their secret, ask for help, build community, or invite others to become invested in their success?

Party or no party, I think the Walshes are onto something.

What do you think?

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Find more resources at PregnantWithHope.com

They're Clueless About Infertility

For infertile couples, part of the frustration – and a major source of heartache – is other people's cluelessness. It may be rooted in ignorance, inexperience, a lack of social skills, or pure self-absorption. Whatever the reason, the words of others can cause deep, lasting pain to hearts that are already fragile.

Just after I miscarried twins, we called my husband’s brother to share our heartbreaking news. We had no idea that he and his wife were also planning to start a family. His reaction? “That’s too bad... but now we’ll have the first grandchild!!”

I was speechless. It took everything I had to get to the end of the phone call.

Thankfully, it’s not always that bad. But people can be incredibly insensitive. Has that been your experience? People you think of as loving family or supportive friends suddenly seem incapable of saying anything helpful? Instead, their words slice right through your spirit and take your breath away?

It’s a common problem for couples going through infertility.

People you trust and care about will be thoughtless enough to ask, “why haven’t you two started a family?” Or, they’ll hand out gratuitous, unsolicited advice like, “just adopt – you’ll get pregnant right away” or, “go on vacation – that’s how we got pregnant” or, “stop worrying about it – it’ll happen sooner or later” – as if tossing these tidbits is all it takes to help you.

Surely, they don’t mean to be heartless. Or patronizing. Or dismissive of the challenge you face. But, all too often, they pour salt in your wound. When the tears threaten to pour down your cheeks, you may wonder, am I being oversensitive? Too defensive?

I don’t think so.

It is hard to explain this journey to someone who hasn’t made it – the stress… the fear… the tension… the uncertainty… the worry… the anger… the grief… the sense of being far removed from everyone and everything “normal”… the inability to get on with your life because you’ve put everything on hold.

How do you say all of that in the middle of a phone call? Or a church hallway? Or a restaurant?

You can’t.

But, here’s what you can do:

Set some boundaries – Recognize that you know better than anyone else what helps you now – and what doesn’t. Set firm, healthy boundaries that will protect your vulnerable heart. Make choices that fill your spirit with hope and surround you with people who truly understand how to help. Say “no” to people and events that leave you empty, discouraged, or afraid. Remember, “God has not given us a spirit of fear, but of power….” [II Tim 1:7]. Use that power to enforce good boundaries.

Give some grace – It’s hard to imagine trying to muster compassion for someone whose remark has just reduced you to tears. The temptation is to focus on the pain they’ve caused. Don’t do it. Release it, reclaim your hope, and let God heal your wound. As Jesus prayed, “…forgive them, they know not what they do” [Luke 23:34].

Find some community – You may be looking to the wrong community for encouragement and hope. If family and friends have failed to offer meaningful support, seek out other couples who understand this journey. Meet with a counselor or clergy member who is not afraid to confront your feelings. And claim this promise, “…hope does not disappoint us, because God has poured out his love into our hearts by the Holy Spirit, whom he has given us” [Romans 5:5]. When no one else stands with you, God delivers His hope to you through the Holy Spirit.

Make some progress – There is no greater satisfaction in this journey than sensing forward progress. Instead of measuring it just by test results or egg harvests, learn to measure progress this way: “… let us throw off everything that hinders us… and let us run with perseverance the race marked out for us” [Heb 12:1-2]. Hurtful remarks hinder us. So does dwelling on them. If we are to run with perseverance, then this isn’t likely to be a sprint. We must pace ourselves – and applaud every bit of progress we make.

The Finish Line is waiting. Don't be distracted by the voices of the crowd.

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Find more resources at PregnantWithHope.com